被診斷為孤獨癥后10件事最重要

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您的孩子剛剛被診斷為孤獨癥嗎？

Has your child just been diagnosed with Autism?

那么，這里有10件重要的事情，它們將有助于您的孩子發揮他或她最大的潛力，而且有助于您管理自己的情緒和生活，無論在您面前的是美好時光，還是厄運時刻。

Then here are ten important tips that will help your child reach his or her full potential, and help you manage your own emotions and life during both the good and the bad times ahead of you.

事件1：自我教育（Tip 1: Self­ Education）

您是您孩子最好的辯護者。對您來說最重要的事情是定期地咨詢健康專家，還有重要的是您自己要學習有關孤獨癥的知識，探索對您的孩子來說什么是最好的行動。這包括：了解最新的信息、與孤獨癥群體中的其他人交談和與其他的孤獨癥兒童父母談論您的處境，這些父母正在經受相似的經歷。

You are your child’s best advocate. As much as it is important for you to regularly consult with health professionals, it is also important to educate yourself about autism and discover what the best course of action will be for your child. This includes keeping abreast of the latest information (now easier with the internet), speaking with other at autism groups, and discussing your situation with other parents of autistic children who are going through similar experiences.

事件2：尋找支持系統（Tip 2: Find a Support System）

盡管朋友和家庭是重要的，但是你會發展加入由其他孤獨癥兒童父母組成的群體也是有幫助的。就是分享您的體驗，同時知道其它人理解您正在經歷的事情也是十分重要的。你也可能會發現其他人能夠提供大量的好辦法，解決您正在面對的問題或其他的難題。

Though friends and family are important, you may also find it helpful to join groups that include other parents of autistic children. Simply sharing your experiences, and knowing that the other person understands just what you’re going through can be very important. You may also find that other parents can provide a surprising amount of insight into resolving problems or other issues that you may be facing.

事件3：測驗與追蹤（Tip 3: Testing and monitoring）

您正在改變您孩子的發展過程，并且采取相應的治療，能夠測量其中的任何變化或成功是重要的。您也應該判斷出在整個發展過程中您的擔心與憂慮。能夠有效地做這個，您應該堅持記錄您孩子的進步（以及您家庭正在取得的進步）。讓您的孩子接受最初的測驗，尋找出左右發展的缺陷，以確定可看到、準確的起點，這樣您將能夠觀察到任何的改變。

It is important to be able measure any changes or successes that you are making in your child’s development and treatment. Also you should be identifying any concerns you have with development over time. To do this effectively you should keep a record of your child’s progress (as well as any progress your family is making). Have your child initially tested for all developmental deficiencies to develop a solid, definitive baseline so that you will be able to observe any changes over time.

事件4：經濟支持（Tip 4: Financial Aid）

從經濟上來說，孤獨癥對許多父母來說是一個無底洞。但是，有許多不同的選擇有助于您在經濟上支持你的治療、測驗、保健和其他花銷巨大卻必需的方法。通常最好的開始之處是您當地的孤獨癥支持小組，在那里其它的父母可能能夠引導您走向正確的方向，向您建議在您當地您有資格享受的經濟支持。

Autism can be a financially draining condition for many parents. However, there are many different options available to help you financially with your child’s treatments, tests, care, and other potentially expensive necessities. Often the best place to start is with your local autism support group, where other parents may be able to guide you in the right direction and suggest different financial options available in your area for which you may qualify.

事件5：生活方式改變（Tip 5: Lifestyle Changes）

當您的孩子最初被診斷為孤獨癥的時候，那時的感覺好像您的生活被完全顛覆了，當然也將有些生活方式改變，這些是您為了保證您的家庭快樂所必需的，也是您孤獨癥孩子持續健康發展所必需的?，F在您知道孤獨癥您孩子癥狀的原因，您能夠開始探索怎么對這些癥狀做出評價，并處理這些癥狀，而且以一種健康可行的方式。您將必須變成您孤獨癥孩子生活中一個十分活躍的參與者；與一個非孤獨癥孩子的生活相比，更加應該這樣，您也將必須記住您也使一個有需要的人，有家庭，他們也需要您，您需要有意識地關心這些要求。

When your child is first diagnosed with autism, it can feel as though your life has been turned upside down and of course there will be some lifestyle changes that you will need to make to ensure your family’s happiness, and the continued healthy development of your autistic child. Now that you know that autism is the cause of your child’s symptoms, you can begin discovering how to react to and manage those symptoms in a healthy and practical way. You will need to become a very active participant in the life of your autistic child; more so than is usually necessary in the life of a non­autistic child. However, you will also need to remember that you are also a person with needs, with a family who have needs too and you need to consciously take care of these requirements.

因此，選擇優先考慮的事情，制定每周的常規，學習怎樣謹慎地管理您的時間是家庭生活健康的關鍵。

So, making priorities, creating weekly routines and learning how to carefully manage your time are key to a healthy family life.

事件6：開始在家庭里的治療課程（Tip 6: Start an At Home Treatment Program）

在與專業工作者交談之后，要自我學習，參加某個孤獨癥群體，并且與其他父母討論，您將對應該采用哪種治療更加清楚。一般來說，最好的孤獨癥治療是那些可以在家里持續進行的，還能夠把治療方案擴展到學校，并且擴大到社區。家庭通常是治療過程中最重要的地方，因為它對您的孩子來說是一個安全的地方，也是家庭成員居住的地方，在家里，可以進行常規活動，制定規則，這里也是他或她一般情況下度過大量時間的地方。

After speaking with specialists, educating yourself, talking to an autism group, and discussing with other parents, you will be clearer about which path you should take for treatment. Generally the best autism treatments are the ones that are continued at home and then expands outward from the treatment program into school and out into the community. Home is often the most important part of treatment practice, as it is a safe place for your child; the place where the family lives, where routines are created, rules are made and where he or she generally spends most of their time.

事件7：開始家庭之外的治療（Tip 7: Start Therapies Outside of the Home）

您孩子的專業工作者可能推薦某些形式的治療方法，例如ABA、言語治療、感覺統合療法等等。通常醫療保險會承擔這些費用，或者要用現金支付。如果家庭之外的治療和家庭里的治療能夠保持一致，那將是最好的。家庭之外的治療通常有助于提高您孩子的社會、交往和互動技能，因為在那樣的環境里，有各種不同的人，孩子可以與這些人大量的接觸。

Your child’s specialist will probably recommend some form of therapy for example ABA, speech therapy, sensory integration therapy etc. Often medical insurance will cover the costs or go a long way towards to paying the bills. It is usually best if treatments outside the home are complimentary to the at ­home treatments. Outside the home treatments can usually help improve your child’s social, communication and interaction skills as there will be exposure to different people in that environment.

事件8：改變營養（Tip 8: Make Nutritional hanges）

“吃什么東西變成什么樣”這句話對于孤獨癥孩子尤其正確，因為有相當多的傳聞說下面的飲食能夠有助于消除孤獨癥的癥狀。而且，孤獨癥孩子似乎更傾向于對事物敏感，例如味道、質地和氣味。記錄您孩子吃的食物，這能夠有助于您理解敏感的類型，這些可能使您相應地調整他們的飲食。

The phrase “you are what you eat” is especially true to autistic children, as there is considerable anecdotal evidence that following certain diets can help autism symptoms. Furthermore, children with autism seem to be more prone to food sensitivities, such as the flavors, textures a nd smell of food. Keeping a record of the foods your child eats can help you understand the types of sensitivities they may have and allow you to adapt their diet accordingly.

事件9：保持積極的態度（Tip 9: Stay Positive）

您維持您家庭環境積極而且有活力的能力是最重要的。如果您失去了您積極的前景，您將努力爭取，以保持有活力，花費時間、注意力，并做出努力，這些是最大化地發掘您孩子潛力所必需的，也是保持家庭關系健康所必需的。當您開始感覺消沉的時候，有意識地使您自己有積極的態度，不要忘記暫時停止工作。

Nothing is more important than your ability to stay positive and motivated about your family’s situation. If you lose your positive outlook, you will struggle to remain motivated and to put in the time, attention and effort required to maximize the potential of your child and develop healthy family relationships. When you start to feel down, consciously remind yourself to take a positive outlook, and don’t forget to take time out...

事件10：暫時停止工作（Tip 10: Take Time Out）

要想從容生活必須弄清楚您到底需要什么?？赡芤写罅康母淖?，以正確地護理您的孤獨癥孩子，但是這也并不排除這樣的事實：您需要就為自己做些事情。您需要時間做自己喜歡的事情，這時候你能夠重新給自己補充能量，并且重新振作起來。

Taking time for yourself is vital to making certain that your own needs are met. A great deal will be required of you in order to properly care for your autistic child, but this does not diminish the fact that there are times that you need to do things just for you. You need time to do something that you enjoy, where you can reenergize and feel refreshed.

要尋找其它的技巧和信息，最大地發掘您孩子的潛力，請登錄：Autism Tree

To discover other strategies and information and maximize the potential of your child please visit Autism Tree.